Clinics & Inpatient Care Units

Hemophilia Comprehensive Care Program

Resources

Hemophilia treatments in 2016: Helping you prepare for new options

Dr. Jerry Teitel, medical director of St. Michael's Hemophilia Program, introduces some of the new products that are being made available for hemophilia treatment, including: Kovaltry, Xyntha, Nuwiq and Eloctate, as well as upcoming treatments, Alprolix, Rixubis, N9-GP and Idelvion.

The video below will help patients make decisions about potentially switching treatments, along with the program's input.

Also, registered nurse Joanne Solarski explains the nursing and practical aspects of switching treatments.

Instructions on how to reconstitute products: Kovaltry, Eloctate, Xyntha and Nuwiq.

Click the options below for more information.

+ Urgent treatment of bleeding in Hemophilia

For people with hemophilia, spontaneous or traumatic bleeding requires urgent treatment. However, since Hemophilia A and B are rare, many physicians aren’t familiar with the principles of managing bleeding disorders in emergency cases.

The Hemophilia Comprehensive Care Program at St. Michael's Hospital — Canada’s largest hemophilia treatment centre — has developed a video and an infographic as brief guides to assist family doctors, emergency physicians or any other clinicians who might be called upon to provide urgent care for a hemophilia patient with an acute bleeding event.

View the clinician resources

+ Bleeding disorders tool kit for clinicians

The Bott-Harrington Nursing Fellowship in Bleeding Disorders Learning Tool Kit is designed to assist nurses and allied health care professionals to acquire specialized knowledge about caring for patients with inherited bleeding disorders.

This comprehensive resource provides the learner with 10 modules covering topics including but not limited to comprehensive care in Canada, clinical manifestations and bleed assessments, home infusion program, and preparing for procedures. All modules aim to provide valuable knowledge that can be incorporated into daily practice.

View the took kit

+ Clinic newsletter: Clinic Notes

Issue 1 (256 kb pdf file)

Pharmacokinetic (PK) Studies
Recovery
Half life

Issue 2 (155 kb pdf file)

What is iron deficiency anemia
How to optimize oral iron therapy
Iron rich foods

Issue 3 (49 kb pdf file)

Infusion records

What they are
Why they are helpful
How to complete them accurately
How to submit them
What happens after you submit them

+ Clinic publications

	In your own words: reflections on living with, or caring for someone with, hemophilia View publication (1.5 MB pdf file)
	Prophylaxis & Arthropathy View publication (1.8 MB pdf file) En francais (918 kb pdf file)
	Recognizing bleeds in hemophilia: a key step in maintaining healthy joints for life View publication (4.2 MB pdf file) En francais (4.1 MB pdf file)
	Take control: transitioning to adult care - What should I know? View publication (493 kb pdf file)