Clinics & Inpatient Care Units
Hemophilia Comprehensive Care Program
April 2018 enewsletter
Subject: Living with hemophilia
We hope this email finds you all well! There is a great resource that we wanted to share this month called Living with Hemophilia.
Living with Hemophilia
Living with Hemophilia is a great Canadian website for anyone whose life is touched by hemophilia. Whether you’re a patient, parent, friend or teacher, you can get the information you need to support you on the journey ahead through the Living with Hemophilia website. There is excellent information about hemophilia and managing hemophilia, as well as information for adults and teenagers with hemophilia, and information that can be shared with parents and families, teachers and daycare, and dentists and allied healthcare professionals. There are also great resources on programs and services and links to additional websites providing more online resources. Definitely worth checking out!
Research at St. Michael’s Hospital
St. Michael’s Hospital participates in a number of research studies related to bleeding disorders. Some of these studies are clinical trials, which are led by pharmaceutical companies to evaluate new treatments in specific patient groups. Currently, we are working to open three trials at St. Michael’s Hospital looking at new treatments for patients with hemophilia A or B meeting a specific set of requirements for participation.
In addition to treatment trials, our team leads a number of projects to better understand specific bleeding disorders and how they affect our patients. This includes, but is not limited to, projects related to hemophilia, hemophilia carriership and von Willebrand disease. We believe these projects are important as they will add to the body of knowledge currently available to the scientific community and our patients. In doing so, we hope to continue to strive for excellence in the care offered to patients with bleeding disorders across Canada.
Consider participating in research. Your participation is necessary to help advance our knowledge of bleeding disorders. For further information on participating in a research study, call the clinic at 416-864-5129.
Web Archive of Email Updates
You can always browse our email update archive here.
Thanks for reading,The St. Michael’s Hemophilia Team